ROCHESTER POTS WALK

October 25, 2025
Webster, New York

Join Dysautonomia International's New York Support Group for the second annual Rochester POTS Walk, Saturday, October 25, 2025 at in Webster, NY.  All funds raised during this event will support Dysautonomia International's POTS Research Fund, which has funded millions of dollars in innovative POTS research grants since 2013.

The Rochester POTS Walk, organized by a local volunteer, will be held at the Charles E. Sexton Memorial Park, in Webster, NY on Saturday, October 25, 2025. You can walk, wheelchair roll, push a stroller or come out to show your support for the cause. The walk is a 1 mile loop around the lake. No walking is required! We’ll have many fun activities for everyone, so you’ll have a great time no matter how you want to participate. In-person registration also includes a complimentary t-shirt. Register before 11:59 PM October 10th to guarantee a shirt.

In-person registration also includes the option to create a personal fundraising page during registration. You can also create a team page or join a friend's team. Please note that you have to create a personal fundraiser during registration to be able to create or join a team. Once you've customized your fundraiser, ask your friends and family to donate to support POTS research.

THERE ARE 4 WAYS TO PARTICIPATE IN THE ROCHESTER POTS WALK?

Your family, business or organization can show your support for the POTS community by becoming a Rochester POTS Walk sponsor. Please reach out to us if you have any questions about the sponsorships (events@dysautonomiainternational.org or 631-202-1720).

Sponsorship payment and logos are due by 11:59pm October 10th to guarantee the above perks. 

VIRTUAL PARTICIPATION

Can't attend in person? You can participate in the Rochester POTS Walk virtually. You will have the option to create a personal fundraising page, create a team, or join a friend's team during the registration process. Please note that you have to create a personal fundraiser during registration to be able to create or join a team. Once you've customized your fundraiser, ask your friends and family to donate to support POTS research. Virtual participants are eligible for fun prizes that you can read about below!  It's up to you whether you want to walk or not to support this fundraiser.

We will not be sending shirts for virtual participants this year.  The only way to get a shirt is to participate in-person.

EVENT DETAILS

LOCATION
The event takes place at the Charles E. Sexton Memorial Park, 750 Holt Rd, Webster, NY 14580. 

PARKING
There is a parking lot to the right of the park.  Our race will begin to the right, just past the lodge.

CHECK IN
Registration opens at 9:30 AM. The event kickoff will be at 11:00 AM.  We suggest you come early (any time after 9:30 AM) to pick-up your goodie bag and t-shirt at the registration desk, and to avoid any wait.  If you have friends who would like to join the event who haven't registered yet we welcome some day registrations at the event, but please note we will not have t-shirts available for same day registrants.

WEATHER POLICY
The event is rain or shine, unless conditions are unsafe (lightening, heavy winds). We will post cancellation/postponement notices on this website and through email if necessary.

AWARD CEREMONY
The Awards ceremony will be held after the walk, at roughly 12:30 PM.

SILENT AUCTION
Silent auction items include a variety of items from local businesses and all kinds of great, and often turquoise, Dysautonomia International swag! Winners of the silent auction will be announced during the award ceremony. You must be on-site to collect your item. If you'd like to donate an item or experience to the silent auction, please contact events@dysautonomiainternational.org.

REFRESHMENTS
Salty snacks and water will be available, but we suggest you bring a filled water bottle and your own snacks too.

SEATING
We encourage participants to bring lawn chairs or a picnic blanket to sit on. Bringing a picnic blanket is much easier than dragging a chair around a field, plus you can lay down on a blanket.

COVID-19 POLICY
Please help us protect the health of POTS patients, caregivers, volunteers and other guests. If you or someone you have been exposed to has recently had COVID-19, or you have unexplained symptoms suggestive of an infection (cough, fever, chills, etc.), please stay home. Masks are welcomed but not required for this outdoor event. The event is in a large open field, so there is plenty of space to spread out while still enjoying the festivities. There are virtual participation options for guests who are unable to attend in person.

PHOTOS
We'd love to see photos of you or your team members running, walking, wheelchair rolling, or raising awareness at the walk or from home! Email us your POTS Walk photos and we may feature your photos on Dysautonomia International's social media channels.

ROCHESTER POTS WALK PRIZES

Individuals who register for the 2025 Rochester POTS Walk are eligible for the prizes below! Prize winners will be announced at the Charles E. Sexton Memorial Park during the awards ceremony following the walk on October 25th. 

PRIZES FOR ONLY IN-PERSON PARTICIPANTS
We'll have a Dysautonomia International Gift Pack for the best "Make Noise For Turquoise" outfit amongst in-person registrants - no walking required. So get your favorite turquoise apparel out and get ready to raise awareness for POTS!

PRIZES FOR IN-PERSON OR VIRTUAL PARTICIPANTS

MOST FUNDS RAISED BY AN INDIVIDUAL
Encourage your friends and family to donate to your personal fundraising page! You''ll receive fundraising credit for your registration fees and donations to your personal fundraiser, donations made by others to your personal fundraiser, cash/check donations made to your personal fundraiser, and sponsorships your obtain. To count towards this prize, cash/check donations must be received by Dysautonomia International's main office (PO Box 596, East Moriches, NY 11940) by 12:00PM EDT October 24, 2025 and must include a note indicating that the donation is for your personal fundraiser. The personal fundraising page that has the most funds raised by 12:00 PM (Noon) EDT on October 24, 2025 will receive a Dysautonomia International Gift Pack.

MOST NUMBER OF TEAM MEMBERS
Encourage your friends and family to register, join your team, and raise funds together! The team with the most registered members by 12:00 PM (Noon) EDT on October 24, 2025 will receive the Team Prize Package described below. The Team Prize Package will be provided to the Team Captain and includes a Certificate of Recognition for all team members; shout out to your team on Dysautonomia International's social media channels; and a Dysautonomia International Gift Pack.

MOST FUNDS RAISED BY A TEAM
Encourage your friends and family to register, join your team, and raise funds together! The team that raises the most funds by 12:00 PM (Noon) EDT on October 24, 2025 will receive the Team Prize Package described below. Teams receive fundraising credit for registration fees and donations by your team members, online donations to your team or personal fundraising pages, sponsorships obtained by your team members, and cash/check donations raised by your team members. To count towards this prize, cash/check donations must be received by Dysautonomia International's main office (PO Box 596, East Moriches, NY 11940) by October 24, 2025 and must include a note indicating that the donation is for your team. The Team Prize Package will be provided to the Team Captain .

BEST TEAM NAME
What's in a name?  In this case, it could be a prize package!  Our race organizers will decide together on the best team name. To be in the running for this prize, your team must be registered by October 24, 2025. The Team Prize Package will be provided to the Team Captain and includes a Certificate of Recognition for all team members; shout out to your team on Dysautonomia International's social media channels; and a Dysautonomia International Gift Pack for the Team Captain.

Individuals/Team Captains can only win one fundraising prize. If the individual with most funds raised is also the Team Captain of the team with most funds raised, they will win the Team Prize and an alternate winner will be chosen for the individual prize.

*Please note that all prizes can be shipped to winners in the continental US at no charge. If a winner would like a prize shipped anywhere outside of the continental US, the winner will be responsible for shipping fees. Final decisions on the winner from each category will be decided by Dysautonomia International.

Please feel free to reach out to us with any questions by emailing us.

Hello! My name is Andrea Accorso. I recently was diagnosed with POTS after a car accident. I decided to create the first POTS Walk in Rochester, NY in 2024 and am excited to be organizing this event again. I am hosting the POTS Walk to raise awareness for a chronic illness that has no cure! My goal is to raise money for Dysautonomia International to continue to research POTS and hopefully someday find a cure. I'm looking forward to the Rochester POTS Walk and meeting new people along the way!

-Andrea