About Amelia Moore

Amelia Moore was a dear friend of Dysautonomia International and she was instrumental in the founding of our organization. Despite suffering with severe illness, Amelia found the strength to advocate for others, and offer them support and hope. She touched the hearts of everyone who knew her. Amelia had a quote on her blog that describes her perfectly, "she who leaves a trail of glitter will not be forgotten." Sadly, Amelia passed away at age 24 due to complications from an exceptionally rare neuromuscular disease. She is dearly missed, but not forgotten. 

The Amelia Moore Scholarship Fund

Amelia's family decided to create the Amelia Moore Scholarship Fund to help those in need, just as Amelia always did. The fund provides complimentary conference registrations for individuals based on financial need. 

Dysautonomia International receives hundreds of applications from families with an economic hardship each year. Contributing to the Amelia Moore Scholarship Fund will help us assist as many of these families as possible.

Dysautonomia International Conference 

The Dysautonomia International Annual Conference is a weekend of educational seminars, engaging speakers, social events, and dysautonomia advocacy training! This is the largest conference on autonomic disorders that brings together patients, caregivers, researchers, physicians, industry representatives, non-profit leaders, and government policy makers. 

We welcome individuals of all ages, but the conference programming is best suited for individuals ages 12 & up. There will be teen programming for ages 12-19, as well as adult programming. Learn more about the Dysautonomia International Conference.

Dysautonomia International is a 501(c)(3) non-profit. All donors will receive a written tax receipt.