ROCHESTER POTS WALK

May 4, 2024
Webster, New York
benefitting

HOW CAN I PARTICIPATE IN ROCHESTER POTS WALK?

IN-PERSON WALK

The in-person Rochester POTS Walk will be held at the Charles E. Sexton Memorial Park, in Webster, NY on Saturday, May 4th, 2024. You can walk, wheelchair roll, push a stroller or come out to show your support for the cause. The walk is a 1 mile loop around the lake. No walking is required! We’ll have many fun activities for everyone, so you’ll have a great time no matter how you want to participate. In-person registration also includes a complimentary t-shirt. Register before 11:59 PM April 22nd to guarantee a shirt! Same day registrations are welcome, but we will not be able to provide t-shirts to guests who register after April 22nd.

In-person registration also includes the option to create a personal fundraising page during registration. You can also create a team page or join a friend's team. Please note that you have to create a personal fundraiser during registration to be able to create or join a team. Once you've customized your fundraiser, ask your friends and family to donate to support POTS research.

VIRTUAL PARTICIPATION

Can't attend in person? You can participate in the Rochester POTS Walk virtually. You will have the option to create a personal fundraising page, create a team, or join a friend's team during the registration process. Please note that you have to create a personal fundraiser during registration to be able to create or join a team. Once you've customized your fundraiser, ask your friends and family to donate to support POTS research. Virtual participants are eligible for fun prizes that you can read about below!  It's up to you whether you want to walk or not to support this fundraiser.

Virtual registrants at the $40 level who register before 11:59 PM April 22nd and provide a shipping address within the continental US will receive a complimentary t-shirt! Please note that shirts for virtual participants will be mailed out in May AFTER the walk.  Shipping within the continental US is included in the registration cost. If you would like your t-shirt shipped outside of the continental US please email events@dysautonomiainternational.org for an estimated shipping cost.

EVENT DETAILS

LOCATION
The event takes place at the Charles E. Sexton Memorial Park, 750 Holt Rd, Webster, NY 14580. 

PARKING
There is a parking lot to the right of the park.  Our race will begin to the right, just past the lodge.

SCHEDULE
9:30AM-10:45AM Registration is open We suggest you come early (anytime after 9:30 AM) to pick-up your goodie bag and t-shirt at the registration desk, and to avoid any wait. We will have crafts and yard games to play with before the race begins.  If you have friends who would like to join the event who haven't registered yet, we welcome same day registrations at the event, but please note we will not have a t-shirt available for same day registrants. 

9:30AM -12:45PM. Silent Auction is open Silent auction items include a variety of items from local businesses and all kinds of great, and often turquoise, Dysautonomia International swag! Winners of the silent auction will be announced during the award ceremony. You must be on-site to collect your item.  If you would like to donate to our silent auction, please contact Andrea at accorso_andrea@roberts.edu

10:45AM Welcome and Announcements We will welcome everyone and make a few announcements.

10:50AM Group Photo We will take a quick group photo before we begin the walk.  Everyone is invited to join!

11:00-12:15 Rochester POTS Walk The walk begins!  We will take a casual one mile stroll around the lake.  Wheelchairs, rollators, assistive device and strollers are welcome.

12:30PM Awards ceremony The awards ceremony will be held after the walk, at roughly 12:30 PM to 1:00 PM. Please note, this is not a chip-timed race. The awards and prizes are described in detail in the turquoise box at the bottom of this page.

12:45PM Silent auction winners announced. We will announce silent auction winners and process payments.  You must be present to claim your silent auction prize.

WEATHER POLICY
The event is rain or shine, unless conditions are unsafe (lightening, heavy winds). We will post cancellation/postponement notices on this website and through email if necessary.

REFRESHMENTS
Salty snacks and water will be available, but we suggest you bring a filled water bottle and your own snacks too.

SEATING
We encourage participants to bring lawn chairs or a picnic blanket to sit on. Bringing a picnic blanket is much easier than dragging a chair around a field, plus you can lay down on a blanket.

COVID-19 POLICY
Please help us protect the health of POTS patients, caregivers, volunteers and other guests. If you or someone you have been exposed to has recently had COVID-19, or you have unexplained symptoms suggestive of an infection (cough, fever, chills, etc.), please stay home. Masks are welcomed but not required for this outdoor event. The event is in a large open field, so there is plenty of space to spread out while still enjoying the festivities. There are virtual participation options for guests who are unable to attend in person.

PHOTOS
We'd love to see photos of you or your team members running, walking, wheelchair rolling, or raising awareness at the walk or from home! Email us your POTS Walk photos and we may feature your photos on Dysautonomia International's social media channels.

PRIZES

Individuals who register for the 2024 Rochester POTS Walk are eligible for the prizes below! Prize winners will be announced at the Charles E. Sexton Memorial Park during the awards ceremony following the walk on May 4th. 

PRIZES FOR ONLY IN-PERSON PARTICIPANTS
We'll have a prize for the best "Make Noise For Turquoise" outfit amongst in-person registrants - no walking required. So get your favorite turquoise apparel out and get ready to raise awareness for POTS!

PRIZES FOR IN-PERSON OR VIRTUAL PARTICIPANTS

MOST FUNDS RAISED BY AN INDIVIDUAL
Encourage your friends and family to donate to your personal fundraising page! You''ll receive fundraising credit for your registration fees and donations to your personal fundraiser, donations made by others to your personal fundraiser, cash/check donations made to your personal fundraiser, and sponsorships your obtain. To count towards this prize, cash/check donations must be received by Dysautonomia International's main office (PO Box 596, East Moriches, NY 11940) by 12:00PM EDT May 3, 2024 and must include a note indicating that the donation is for your personal fundraiser. The personal fundraising page that has the most funds raised by 12:00 PM (Noon) EDT on May 3, 2024 will receive a Dysautonomia International Gift Pack with a pair of Cure POTS shoelaces, a Cure POTS tote bag, a turquoise metallic Dysautonomia International water bottle, a Dysautonomia International branded phone charger, and a pair of Dysautonomia International turquoise awareness ribbon compression socks.

MOST NUMBER OF TEAM MEMBERS
Encourage your friends and family to register, join your team, and raise funds together! The team with the most registered members by 12:00 PM (Noon) EDT on May 3, 2024 will receive the Team Prize Package described below. The Team Prize Package will be provided to the Team Captain and includes a Certificate of Recognition for all team members; shout out to your team on Dysautonomia International's social media channels; and a Dysautonomia International Gift Pack for the Team Captain that includes a pair of Cure POTS shoelaces, a Cure POTS tote bag, a turquoise metallic Dysautonomia International water bottle, a Dysautonomia International branded phone charger, and a pair of Dysautonomia International turquoise awareness ribbon compression socks.

MOST FUNDS RAISED BY A TEAM
Encourage your friends and family to register, join your team, and raise funds together! The team that raises the most funds by 12:00 PM (Noon) EDT on May 3, 2024 will receive the Team Prize Package described below. Teams receive fundraising credit for registration fees and donations by your team members, online donations to your team or personal fundraising pages, sponsorships obtained by your team members, and cash/check donations raised by your team members. To count towards this prize, cash/check donations must be received by Dysautonomia International's main office (PO Box 596, East Moriches, NY 11940) by May 3, 2024 and must include a note indicating that the donation is for your team. The Team Prize Package will be provided to the Team Captain and includes a Certificate of Recognition for all team members; shout out to your team on Dysautonomia International's social media channels; and a Dysautonomia International Gift Pack for the Team Captain that includes a pair of Cure POTS shoelaces, a Cure POTS tote bag, a turquoise metallic Dysautonomia International water bottle, a Dysautonomia International branded phone charger, and a pair of Dysautonomia International turquoise awareness ribbon compression socks.

BEST TEAM NAME
What's in a name?  In this case, it could be a prize package!  Our race organizers will decide together on the best team name. To be in the running for this prize, your team must be registered by May 3, 2024. The Team Prize Package will be provided to the Team Captain and includes a Certificate of Recognition for all team members; shout out to your team on Dysautonomia International's social media channels; and a Dysautonomia International Gift Pack for the Team Captain that includes a pair of Cure POTS shoelaces, a Cure POTS tote bag, a turquoise metallic Dysautonomia International water bottle, a Dysautonomia International branded phone charger, and a pair of Dysautonomia International turquoise awareness ribbon compression socks.

Individuals/Team Captains can only win one fundraising prize. If the individual with most funds raised is also the Team Captain of the team with most funds raised, they will win the Team Prize and an alternate winner will be chosen for the individual prize.

*Please note that all prizes can be shipped to winners in the continental US at no charge. If a winner would like a prize shipped anywhere outside of the continental US, the winner will be responsible for shipping fees. Final decisions on the winner from each category will be decided by Dysautonomia International.

Please feel free to reach out to us with any questions by emailing us.

Hello! My name is Andrea Accorso. I recently was diagnosed with POTS after a car accident. I decided to create the first POTS Walk in Rochester, NY. I am hosting the POTS Walk to raise awareness for a chronic illness that has no cure! My goal is to raise money for Dysautonomia International to continue to research POTS and hopefully someday find a cure. I'm looking forward to the Rochester POTS Walk and meeting new people along the way!

-Andrea