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DETROIT POTS WALK & 5K
SEPTEMBER 22, 2024
ROCHESTER, MICHIGAN
We invite you to join Dysautonomia International's Michigan Support Group for the 2024 Detroit POTS Walk & 5K, Sunday, September 22, 2024 in Rochester, MI. Same day registrants welcome - register at the park! All funds raised during this event will support Dysautonomia International's POTS Research Fund, which has funded millions of dollars in innovative POTS research grants since 2013.
Detroit POTS Walk Schedule
9:30 AM: Coffee provided by Starbucks and donuts provided by Fidelity while supplies last
9:30 AM - 10:45am: Check-In at the Kiwanis Pavillion (same day registrants welcome)
10:00 AM: Silent Auction, Dysautonomia International Merchandise Desk & Photo Booth Open
10:45 AM: Welcome Remarks from the POTS Walk Chairs
10:55 AM: Group Photo
11:00 AM: POTS Walk & 5K kickoff at the starting line
12:30 PM: Awards Ceremony & Auction Winners Announced
12:45 PM - 1:00 PM: Last Call for Photo Booth & Merchandise Desk & Event Wrap-Up
4 WAYS TO PARTICIPATE IN THE DETROIT POTS WALK & 5K
2. After registering for the walk, create or join a fundraising team (you must create a fundraising page if you want to join a team).
3. Sponsor the walk.
4. Donate to the walk without registering.
IN-PERSON WALK
The in-person Detroit POTS Walk & 5K will be held at City of Rochester Municipal Park, in Rochester, Michigan on Sunday, September 22nd, 2024. You can run, walk, wheelchair roll, or come out to show your support for the cause. No running or walking required! We’ll have many fun activities for everyone, so you’ll have a great time no matter how you want to participate. In-person registration also includes a complimentary t-shirt. The t-shirt deadline has now passed. The online registration period has also ended. Same day registrations are welcome, but we will not be able to provide t-shirts to same-day registrants.
In-person registration also includes the option to create a personal fundraising page during registration. You can also create a team page or join a friend's team. Please note that you have to create a personal fundraiser during registration to be able to create or join a team. Once you've customized your fundraiser, ask your friends and family to donate to support POTS research.
VIRTUAL WALK
Can't attend in person? You can participate in the Detroit POTS Walk & 5K virtually! Walk in your own neighborhood, or create a POTS Walk fundraising team without any walking required - your donations will help us walk towards a cure! You will have the option to create a personal fundraising page, create a team, or join a friend's team during the registration process. Please note that you have to create a personal fundraiser during registration to be able to create or join a team. Once you've customized your fundraiser, ask your friends and family to donate to support POTS research. Virtual participants are eligible for fun prizes!
Virtual registrants at the $40 level who register before the t-shirt deadline and provide a shipping address within the continental US will receive a complimentary t-shirt! Please note: the t-shirt deadline has passed and shirts for virtual participants will be mailed out the week AFTER the walk. Shipping t-shirts outside of the continental US is cost-prohibitive, so we cannot offer t-shirt shipping outside of the continental US.
SPONSOR THE WALK
Your family, business or organization can show your support for the POTS community by becoming a Detroit POTS Walk & 5K sponsor. Please reach out to us if you have any questions about the sponsorships (events@dysautonomiainternational.org or 631-202-1720).
GAME CHANGER $5000 - Recognition on the back of t-shirts, event website, event signage, Dysautonomia International's social media accounts and recognition in post-event email sent to all event participants. Eight complimentary in-person or virtual walk registrations and t-shirts, 4 pairs of Cure POTS shoe laces, 4 Cure POTS tote bags. Two 10'x10' tent spaces available (must provide own tents).
THOUGHT LEADER $2500 - Recognition on the back of t-shirts, event website and event signage. Eight complimentary in-person or virtual walk registrations and t-shirts, 4 pairs of Cure POTS shoe laces, 4 Cure POTS tote bags. One 10'x10' tent spaces available (must provide own tents).
INNOVATOR $1000 - Recognition on the back of t-shirts, event website and event signage. Six complimentary in-person or virtual walk registrations and t-shirts, 2 pairs of Cure POTS shoe laces, 2 Cure POTS tote bags. One 10'x10' tent spaces available (must provide own tents).
JUNIOR SCIENTIST $500 - Recognition on the back of t-shirts, event website and event signage. Four complimentary in-person or virtual walk registrations and t-shirts, one pair of Cure POTS shoe laces and one Cure POTS tote bag. One 10'x10' tent spaces available (must provide own tents).
LAB GEEK $250 - Recognition on the back of t-shirts and event signage. Two complimentary in-person event registrations and t-shirts. One 10'x10' space available (must provide own tent).
Sponsorship payment and logos are due by 11:59pm September 8th to guarantee the above perks. Dysautonomia International reserves the right to reject sponsorship offers that aren't the right fit for our organization.
HOW TO GET A POTS WALK T-SHIRT:
1) Register at the $40 virtual or in person registration level by 11:59 PM on September 15th to guarantee a shirt, or
2) Sponsor the POTS Walk at the $250 level or above before 11:59 PM September 15th to guarantee shirts.
The t-shirt deadline has passed.
Please note, we can only ship shirts to addresses in the continental US.
EVENT DETAILS
The event takes place at the City of Rochester Municipal Park, 400 6th Street, Rochester, MI 48307. View the Event Map.
PARKING
You will want to enter from Pine St (NOT Ludlow). It is a short little road that dead ends at the entrance of the park and parking lot. The Rochester Police Department is right there as a helpful landmark as well. Once you park, you will see a small pond and there will be a sign pointing to go to the right over a bridge. There you will find us under a big green pavilion with a Kiwanis logo. The Kiwanis Pavilion is where everyone will check in, where our Silent Auction will be held, and where prize announcements will be made. For those that have little ones, there is also a large play set with slides and swings right next to the pavilion. Restrooms are also located close to the event festivities.
CHECK IN
Registration opens at 9:30 AM. The event kickoff will start at 11:00 AM. We suggest you come early (anytime after 9:30 AM) to pick-up your goodie bag and t-shirt at the registration desk, and to avoid any wait. If you have friends who would like to join the event who haven't registered yet, we welcome same day registrations at the event, but please note we may not have a t-shirt available for same day registrants.
WEATHER POLICY
The event is rain or shine, unless conditions are unsafe (lightening, heavy winds). We will post cancellation/postponement notices at potswalk.org/detroit if necessary.
AWARDS CEREMONY
The awards ceremony will be held after the walk, at roughly 12:30 PM to 1:00 PM. Please note, this is not a chip timed race.
SILENT AUCTION
Silent auction items include a variety of items from local businesses and all kinds of great, and often turquoise, Dysautonomia International swag! Winners of the silent auction will be announced during the award ceremony. You must be on-site to collect your item. If yo'd like to donate an item or experience to the silent auction, please contact events@dysautonomiainternational.org.
REFRESHMENTS
Salty snacks and water will be provided, but we suggest you bring a filled water bottle and your own snacks too.
SEATING
There will be some seating, but we encourage participants to bring lawn chairs or a picnic blanket to sit on. Bringing a picnic blanket is much easier than dragging a chair around a big field, plus you can lay down on a blanket.
COVID-19 POLICY
Please help us protect the health of POTS patients, caregivers, volunteers and other guests. If you or someone you have been exposed to has recently had COVID-19, or you have unexplained symptoms suggestive of an infection (cough, fever, chills, etc.), please stay home. Masks are encouraged, but not required for this outdoor event. The event is in a large open field, so there is plenty of space to spread out while still enjoying the festivities.
PHOTOS
We'd love to see photos of you or your team members running, walking, wheelchair rolling, or raising awareness from home! Email us your POTS Walk photos and we may feature your photos on Dysautonomia International's social media channels.
DETROIT POTS WALK PRIZES
Individuals who register for the 2024 Detroit POTS Walk & 5K are eligible for the prizes below! Prize winners will be announced at the City of Rochester Municipal Park during the awards ceremony at 1:30 PM on September 22nd. All winners will also be contacted via email.
PRIZES FOR IN-PERSON PARTICIPANTS
Medals will be awarded to 1st, 2nd, and 3rd place winners who complete the 5K course. We'll also have a prize for the best "Make Noise For Turquoise" outfit amongst in-person registrants - no running required. So get your favorite turquoise apparel out and get ready to raise awareness for POTS!
PRIZES FOR IN-PERSON OR VIRTUAL PARTICIPANTS
MOST FUNDS RAISED BY AN INDIVIDUAL
Encourage your friends and family to donate to your personal fundraising page! You''ll receive fundraising credit for your registration fees and donations to your personal fundraiser, donations made by others to your personal fundraiser, cash/check donations made to your personal fundraiser, and sponsorships your obtain. To count towards this prize, cash/check donations must be received by Dysautonomia International's main office (PO Box 596, East Moriches, NY 11940) by 12:00PM EDT September 20th, 2024 and must include a note indicating that the donation is for your personal fundraiser. The personal fundraising page that has the most funds raised by 12:00 PM (Noon) EDT on September 20th, 2024 will receive a Dysautonomia International Gift Pack with a pair of Cure POTS shoelaces, a Cure POTS tote bag and a pair of Dysautonomia International turquoise awareness ribbon compression socks.
MOST FUNDS RAISED BY A TEAM
Encourage your friends and family to register, join your team, and raise funds together! The team that raises the most funds by 12:00 PM (Noon) EDT on September 20th, 2024 will receive the Team Prize Package described below. Teams receive fundraising credit for registration fees and donations by your team members, online donations to your team or personal fundraising pages, sponsorships obtained by your team members, and cash/check donations raised by your team members. To count towards this prize, cash/check donations must be received by Dysautonomia International's main office (PO Box 596, East Moriches, NY 11940) by September 20th, 2024 and must include a note indicating that the donation is for your team. The Team Prize Package will be provided to the Team Captain and includes a Certificate of Recognition for all team members; shout out to your team on Dysautonomia International's social media channels; and a Dysautonomia International Gift Pack for the Team Captain that includes a pair of Cure POTS shoelaces, a Cure POTS tote bag and a pair of Dysautonomia International turquoise awareness ribbon compression socks.
Individuals/Team Captains can only win one fundraising prize. If the individual with most funds raised is also the Team Captain of the team with most funds raised, they will win the Team Prize and an alternate winner will be chosen for the individual prize.
*Please note that all prizes can be shipped to winners in the continental US at no charge. If a winner would like a prize shipped anywhere outside of the continental US, the winner will be responsible for shipping fees. Final decisions on the winner from each category will be decided by Dysautonomia International.
FUNDRAISING LEADERBOARD
These are the virtual and in-person participants who are raising funds for POTS research. Register for the virtual or in-person registration and start a personal fundraising page to join this amazing community of supporters! You also have the option to create or join a team.
A MESSAGE FROM THE DETROIT POTS WALK & 5K CO-CHAIRS:
Hi! My name is Lesley Sleeman, co-founder of the Detroit POTS Walk & 5K. After attending a conference many years ago and seeing the work that Dysautonomia International does I have wanted to do something to raise money and awareness towards research.
After a viral illness at the age of 13 almost completely debilitated me, I then developed POTS/Dysautonomia. It took me 9 1/2 years to get diagnosed and because of this organization we have come a long way, and we still have more to go! I took my drive for patient advocacy and now work in cardiology at Beaumont Royal Oak as a cardiac-sonographer.
I can’t wait to see what we can do for the third POTS Walk & 5K in MI! Thanks for the support and I can’t wait to make an impact.
- Lesley
Hi, my name is Marina and I am the Co-Chair for the Detroit POTS Walk.
I was diagnosed with POTS in 2015 after an anaphylactic reaction to a vaccine. I had just started a career in EMS and dispatch but was too sick to work. I was in and out of the hospital regularly. I was diagnosed relatively quickly and was able to start living my life again thanks to my medical team and the support of the Dysautonomia International community!
My goal is to see that everyone gets that quick diagnosis and the resources they need! I believe it is possible by funding research and education around POTS and by spreading awareness in the medical community and our communities at home!
I am so grateful to be back for our third annual walk here in Michigan!
- Marina
GAME CHANGER SPONSORS
THOUGHT LEADER SPONSORS
INNOVATOR SPONSORS
JUNIOR SCIENTIST SPONSORS
LAB GEEK SPONSORS
Interested in sponsoring this event? Contact Charlotte Florez at cflorez@dysautonomiainternational.org or 631-202-1720.
REGISTER
CHECKOUT
THANK YOU!
Thank you for supporting the 2024 Detroit POTS Walk & 5K! Below is a summary of your transaction. An email confirmation will be automatically sent in addition to this summary. If you do not receive an e-mail within the next 3 hours, please check your spam folder.
Please note: If you registered for the in-person event, t-shirts must be picked up at the event on Sunday, September 22 at the registration desk. If you signed up for virtual registration with a t-shirt, your shirt will be mailed to you after the event in the first week of October.
Dysautonomia International is a 501(c)(3) non-profit organization and all donations are tax deductible to the maximum extent allowed by law. Please check with your tax advisor regarding the deductibility of your contribution.
Questions? Please email us.