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All donations made by December 31st will be doubled up to $190,000 thanks to the Menzin Family and a generous "Secret Santa" donor!
How Your Gift Makes an Impact:
Research
Your donations to Dysautonomia International have supported nearly $4M in ground-breaking research to date, and we hope to award an additional $800K in research grants this December. Our patient community urgently needs more effective treatments and cures, and research is our best hope of getting there. Studies currently in need of funding include:
- The first plasmapheresis clinical trial in POTS at University of Adelaide
- The first study taking a deep dive into the biological mechanisms that link postural orthostatic tachycardia syndrome (POTS) and Ehlers-Danlos syndrome (EDS) at University of Calgary
- New antibody and immune biomarker discovery in POTS at Case Western
- The first study exploring autonomic and sensory ganglia pathology in POTS, looking for antibodies that attack the ganglia, at Johns Hopkins
- The first study exploring the biological relationship between pediatric POTS, EDS, mast cell activation syndrome (MCAS) and eosinophilic esophagitis (EoE) at Lurie Children's Hospital
- And more!
Education
Dysautonomia International hosts accredited physician education courses throughout the year, to train more medical professionals, which is needed to reduce diagnostic delays and improve the quality of care people with autonomic disorders receive after diagnosis.
For patients and caregivers, we offer webinars, journal articles, printable educational materials, and the world's largest collection of dysautonomia lectures on our Autonomic Disorders Video Library - all available for free thanks to the generous support of donors like you!
Advocacy
Earlier this year, Dysautonomia International obtained the first ICD-10 code for postural orthostatic tachycardia syndrome (POTS) from the US Centers for Disease Control (CDC), which will allow doctors to accurately record POTS in medical records. We're working with the CDC to make sure clinicians around the country receive information on the new ICD code, and how to accurately diagnose and treat POTS, which will reduce diagnostic delays and improve the quality of clinical care. We're working with our Medical Advisory Board to determine if there are other types of dysautonomia that need new ICD-10 codes.
We continue to serve as the voice of the dysautonomia community on Capitol Hill, advocating for policies that benefit our entire patient community!
Support Programs
Dysautonomia International is here to serve patients and their families, offering support groups in all 50 states and 60 countries, along with monthly meets ups! Support groups are a great way to connect with local patients and caregivers who understand what you're going through, get helpful clinician recommendations, and form new friendships.
How You Can DOUBLE Your Impact
There are several ways to have your donation doubled through Dysautonomia International's Holiday Matching Grant Challenge:
1. Donate by credit card through this website.
2. Create a personalized fundraising page through this website to invite your family and friends to contribute.
3. Donate by check. Checks can be made payable to Dysautonomia International and mailed to Dysautonomia International, PO Box 596, East Moriches, NY 11940.
4. Donate crypto.
5. Donate stock (please contact our office at 631-202-1720).
6. Find out if your employer or your spouse's employer will match your donation.
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