2021 POTS Walk

Thank you to everyone who made POTS Walk 2021 a success! 1375 donors raised $104,000 in the month of September. These funds will support important new POTS research grants aimed at finding more effective treatments for millions of people living with POTS.

Special shout out to our team prize winners! The Fundraising Superstars prize goes to the Massachusetts POTS Walk Team, which raised over $25,000! The Team Building Rockstars prize goes to the Ohio POTS Walk Team! Great job everyone.

October is Dysautonomia Awareness Month!!! Find out how to get involved with awareness month at CureDys.org/awareness.

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SPONSOR

THREE WAYS TO GET INVOLVED

1. Register for the POTS Walk to create a personalized fundraising page. Join the state or international team you'd like to be part of when you register. If you'd like to purchase a POTS Walk shirt, you must register for the POTS Walk first.

2. If you'd rather not create a personalized fundraising page, you can donate to the state or international team of your choice, or donate through the main POTS Walk website.

3. Become a POTS Walk sponsor! Review the sponsorship packages, or contact us for assistance with sponsorships (events@dysautonomiainternational.org).

FIND YOUR STATE OR INTERNATIONAL TEAM

Enter the state team you would like to join in the search bar above. For international participants, enter "International Team."

LEADERBOARD

Top Individuals
Top Teams

POTS WALK 2021 SPONSORSHIP PACKAGES

POTS WALK 2021 PRIZES

INDIVIDUAL PRIZES
POTS WALK 2021 BRONZE Register for the POTS Walk before September 30th and raise or donate $100 or more on your individual fundraiser page (other than shirt purchases) to receive a free pair of Cure POTS shoelaces. These white laces with turquoise writing and awareness ribbons on them are sure to be a conversation starter!

POTS WALK 2021 SILVER

Register for the POTS Walk before September 30th and raise or donate $500 or more on your individual fundraiser page (other than shirt purchases) to receive a free pair of Cure POTS shoelaces and a Cure POTS tote bag.

POTS WALK 2021 GOLD

Register for the POTS Walk before September 30th and raise or donate $1000 or more on your individual fundraiser page (other than shirt purchases) to receive a free pair of Cure POTS shoelaces, a Cure POTS tote bag, and a Dysautonomia International turquoise metallic water bottle.

TEAM PRIZES

POTS WALK 2021 TEAM FUNDRAISING SUPERSTARS

The POTS Walk 2021 US state or international team that raises the most overall funds will win a private virtual meet & greet with Dysautonomia International's leading POTS experts. Registered team members will be sent a private invite to this meeting. The POTS experts will give us an update on the latest POTS research and will do their best to answer as many POTS/dysautonomia-related questions as possible from the team members.

POTS WALK 2021 TEAM BUILDING ROCKSTARS

The POTS Walk 2021 US state or international team that has the most registered team members will receive an invitation to join an educational lecture on a dysautonomia topic of choice chosen by the team captain. Registered team members will be sent a private invite to this meeting.

If your state or international team raises the most money and has the most number of registrants, your team will only be eligible only for one of the team prizes, at the discretion of your team captain. A second team will win the other team prize. Note, you must be part of a US state or international team (New York POTS Walk Team, California POTS Walk Team, International POTS Walk Team, etc.) to be eligible for the team prizes.

What is POTS?

POTS stands for postural orthostatic tachycardia syndrome, which is a disorder of the autonomic nervous system, a form of dysautonomia. The autonomic nervous system is responsible for regulating many systems in our bodies, including heart rate and blood pressure. When a POTS patient stands upright their body is unable to regulate heart rate and blood flow properly. This leads to an abnormal increase in heart rate. Because the autonomic nervous system is responsible for controlling many bodily functions, POTS can cause a whole range of other symptoms including, nausea, fatigue, sweating, lightheadedness, etc. POTS is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world.

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THANK YOU TO OUR SPONSORS!

A Message From The POTS Walk Chairperson
Hello! I’m Jackie Rutter Gully, Dysautonomia International Board Member, enthusiastic POTS advocate, and mom of Hanna G, a POTS patient and member of Dysautonomia International’s Patient Advisory Board who is best known for her ever-changing hair color. Our family has been involved with the POTS Walk since 2014, the year Hanna was diagnosed after spending seven years searching for the source of her seemingly myriad health problems.

The Rutter Gully family is passionate about POTS awareness, education, and, most importantly, research. Research is key to advancing the science and to finding ways to better the lives of those suffering with POTS. The POTS Walk, with its roots in Boston, has been raising funds for POTS research for six years now.

Please join us in supporting the 2021 POTS Walk, which will fund ground-breaking POTS research. Together we are WALKING TOWARDS A CURE!

Rutter Gully team members: Dylan, Jojo, Jackie, Hanna, Andrew, Jocelyn, and Tim. Supportive POTS families are the best!