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"Meet me in St. Louis" for a fantastic weekend of educational seminars, engaging speakers, social events and dysautonomia advocacy training during Dysautonomia International's 8th Annual Conference! With over 600 guests attending each year, this is the largest conference on autonomic disorders that brings together patients, caregivers, researchers, physicians, industry representatives, non-profit leaders and government policy makers.
We welcome individuals of all ages, but the conference programming is best suited for individuals ages 12 & up. There is a Teen Program for adolescents aged 12-18. There are sessions for adult patients, family members, and medical professionals as well.
Please read all of the information on this page before registering at the bottom of the page.
CONFERENCE DATES
June 26-28, 2020
CONFERENCE LOCATION
Marriott St. Louis Airport
10700 Pear Tree Lane
St. Louis, MO 63134
Please book your hotel reservation <u>after</u> purchasing your conference pass. A discounted room block will be offered after the registration process.
TARGET AUDIENCE
The Dysautonomia International 8th Annual Conference will offer educational, social and networking opportunities for patients, caregivers, medical professionals, business and non-profit leaders and government representatives who would like to learn more about autonomic nervous system disorders.
A Continuing Medical Education (CME) Course for licensed medical professionals and graduate students in the health professions is also being planned. The CME Course will take place on Saturday, June 27 during the Conference. A separate registration link for the CME course will be posted soon.
CONFERENCE REGISTRATION
Early Bird Conference Registration (before May 1): $300 per person
Regular Conference Registration: $350 per person
CME Registration: $200 (CME link will be posted soon)
CME + Conference Registration: $400 per person (CME link will be posted soon)
The Conference always sells out well in advance, so we recommend registering early. Conference registration includes a welcome reception and entertainment on Friday evening, Saturday lunch, Saturday night awards dinner and entertainment, Sunday lunch, and access to educational lectures, interactive sessions and social activities throughout the weekend.
The CME Course will include a full day of CME presentations and lunch on Saturday.
Conference and CME registration fees will not be refunded after May 26, 2020 for any reason. Prior to this date, fees can be refunded less a $20 service charge per registration to cover the cost of processing the registration and refund. Registrations are not transferable. If you have already paid for your registration and would like a refund on or before May 26th, please contact us at conference@dysautonomiainternational.org.
SPEAKERS & TOPICS
Many of the world's leading experts on autonomic disorders are joining us, as well as other engaging speakers on topics of interest to the dysautonomia community.
Topics include postural orthostatic tachycardia syndrome, neurocardiogenic syncope, orthostatic hypotension, gastroparesis, autonomic and sensory neuropathies, Ehlers-Danlos syndrome, mast cell activation syndrome, Sjogren's syndrome, cerebrospinal fluid leaks in dysautonomia, chronic pain management, chronic Illness coping skills, research updates and more!
Throughout the conference there will be a separate fun program for teens, although teens are welcome to participate in the regular Conference programming as well.
SCHEDULE OUTLINE
Friday, Jun 26th
6:00pm-10:00pm - Registration & Welcome Reception
Saturday, June 27th
9:00am-5:00pm - CME Course
9:00am-5:00pm - Educational Sessions & Social Activities
6:30pm-9:30pm - Awards Dinner
Sunday, June 28th
9:00am-4:00pm - Educational Sessions & Social Activities
A more detailed schedule will be posted closer to the event date.
HOTEL ACCOMMODATIONS
The conference will be held at the Marriott St. Louis. The hotel is conveniently located across from the Lambert International Airport (STL). The hotel provides 24/7 complimentary shuttle service to/from the hotel. The property is fully air-conditioned and has an indoor and outdoor pool along with a fitness center. Wheelchair accessible rooms are available upon request. Your room night fee includes complimentary hot buffet breakfast (up to 4 guests per room) and complimentary wireless internet access in your sleeping room.
A block of rooms is being held for conference participants at a discounted rate. Nightly rates (not including applicable taxes) are $140 per night for single/double occupancy.
The discounted room block rate is available on a first come, first serve basis until June 3, 2020. Once the room block is full, rooms are subject to availability at the current market rate. Guests are responsible for booking their own hotel reservations.
**Please wait to receive confirmation of your conference registration prior to booking your hotel room. Your conference registration confirmation email will contain a link to reserve a room at the discounted rate.**
Guests will be required to show conference credentials during the conference for admission into sessions, meal functions, social activities and hospitality locations.
MEALS
Dysautonomia International provides a welcome reception on Friday evening, a buffet lunch, buffet dinner and dessert on Saturday, a box lunch on Sunday, as well as salty snacks and hydrating fluids throughout the weekend. Vegetarian and gluten free options will be available. Ingredient lists are available for each meal and hotel staff will be available should you have any questions.
TRANSPORTATION
The hotel provides 24hr/7 day complimentary shuttle services to/from the airport. Complimentary parking is available for overnight hotel guests who are registered for the conference.
WHAT TO WEAR?
Dress is summer casual for the conference, with many of our guests wearing turquoise for dysautonomia awareness. You may want to bring a cardigan or sweater because the meeting rooms can get a little chilly sometimes. We suggest summer cocktail party attire for the Saturday night Awards Dinner. Don't forget a bathing suit if you'd like to make use of the hotel pool.
PET POLICY
Pets are strictly prohibited at the Conference. https://www.ada.gov/regs2010/service_animal_qa.html that have been individually trained to do work or perform tasks for an individual with a disability are welcome.
LOCAL ATTRACTIONS
We're planning a busy weekend, but if you'd like to explore the area you can visit explorestlouis.com for local information. The discounted hotel room rate is available a few days before and after the conference if you may want to extend your stay to check out more of what St. Louis has to offer. Our favorites... take a ride up the St. Louis arch, check out the historic Budweiser brewery, and stop at Ted Drewes Frozen Custard on historic Route 66 for a yummy treat.
SPONSORSHIPS, EXHIBIT BOOTHS, JOURNAL ADS & CHARITY AUCTION
There are many sponsorship, exhibit and advertising opportunities for businesses, organizations and individuals interested in supporting Dysautonomia International's 8th Annual Conference, whether or not you are planning to attend. Ads are available to be purchased in the commemorative program. Donations of items for our Silent Auction and catering items (snacks, desserts, bottled beverages) are appreciated. Please contact Kirsten Slowey for additional information (kslowey@dysautonomiainternational.org or 631-202-1720 x2) to review our Conference Prospectus.
QUESTIONS?
Please feel free to contact us with any questions. conference@dysautonomiainternational.org
Dear Dysautonomia International community,
Dysautonomia International hosts over 250 events per year on three continents. The health and safety of our community members, volunteers, and staff are our top priority. Out of an abundance of caution, after reviewing ongoing CDC and WHO reports on coronavirus (COVID-19) and consulting with our Medical Advisory Board, Dysautonomia International has made the difficult decision to postpone our 2020 annual conference until the fall. We will announce the new date on this page and our social media channels as soon as it's confirmed.
Please note, we will email all guests who have already registered for the conference to offer them a full refund or the option to maintain their registration until the fall dates are announced. If you have any questions about your registration, you can contact us at 631-202-1720 or events@dysautonomiainternational.org.
We encourage the dysautonomia community to be informed on the best practices to prevent the spread of COVID-19 and what to do if you think you may be sick. The CDC's COVID-19 website is a helpful resource that is updated frequently with the latest information.
Thank you for your patience and understanding as we adjust our operations to address this evolving situation.
Sincerely,
Lauren Stiles, JD
President & Co-Founder
Dysautonomia International
Registration Summary & Check-Out
Cancellation & Refund Policy
Conference registration fees will not be refunded after May 26, 2020. Prior to this date, fees can be refunded less a $20 service charge per registration to cover the cost of processing the registration and refund. Registrations are not transferable. If you have already paid for your registration and would like a refund on or before May 26th, please contact us at conference@dysautonomiainternational.org.
Confirmation & Hotel Information
You will receive a confirmation email after completing your registration. The confirmation email will provide hotel information and a link to make your room reservation directly with the hotel through our discounted room block.
Photo/Video Release
By registering for the 2020 Dysautonomia International Conference, I hereby grant employees, agents or other representatives of Dysautonomia International permission to photograph and/or audio-visually record me and any other individuals I have registered on behalf of, including but not limited to my minor dependent(s), during the Conference, and to use any such photography or recording in any print or electronic media, including educational, editorial, or promotional publications prepared by Dysautonomia International. I will make no monetary or other claim against Dysautonomia International for the use of such images or recordings, and I understand that Dysautonomia International makes no promise to publish them.
Third Party Promotions
The annual conference is a private event for Dysautonomia International guests to get to know each other and our organization better. We prohibit the promotion of products, services, companies, or organizations on hotel grounds during the conference weekend unless said products, services, companies or organizations are approved Dysautonomia International conference partners. Individuals found to be in violation of this policy will forfeit their conference registration without refund and may be prohibited from attending Dysautonomia International events in the future.
Pet Policy
Pets are not permitted to attend the Conference. The only animals permitted at the Conference are service animals trained to work or perform tasks needed to assist a person with a disability, as defined by the Americans with Disabilities Act (ADA). Service animals must be under control of handlers at all times. If a service animal is out of control and the handler does not take effective action to control the animal, staff may request that the animal be removed from the Conference space to protect the safety of our guests and other service animals attending the Conference.
Payment Options
Payment in full is required to reserve your registration. Should you have any questions regarding check payment or prefer to process your credit card payment offline, please contact Kirsten Slowey (631-202-1720 ext. 2) and she will assist you.
Donations
You have the option to donate to Dysautonomia International beyond the cost of the registration pass if you would like to do so. We appreciate your support and generosity. Please complete the requested information below to submit your donation. A receipt will be emailed to you for your records.
Thank you for registering for the 8th Annual Dysautonomia International Conference! A copy of your receipt and confirmation will be emailed to you.
The conference will be held at the Marriott St. Louis Airport in St. Louis, Missouri. Reserve your hotel room here. A limited number of rooms are available at the discounted group rate. We recommend making your hotel reservations early.