The Boston POTS Walk is Going Global with the 2020 POTS Walk #STEPtember Challenge!
Join patients, families, and friends as we Step Out for #STEPtember to fund POTS research.
This virtual challenge will run the entire month of September and will be a friendly competition with incredible prizes! Each US State, Canadian province, and countries outside of the US and Canada will compete for prizes based on the most funds raised, most registrant and most miles walked/run/wheelchair-rolled per region. Top prizes include Dysautonomia International hosted physician and patient education courses for your geographic area, and a Meet-and-Greet with a noted dysautonomia expert, Dr. Blair Grubb*
With over 70 million worldwide affected by dysautonomia, we need your help to make a difference! Dysautonomia (pronounced “dis – oughta – know' – me – uh”) is an umbrella term that includes many disorders that affect the autonomic nervous system. This system controls automatic body functions such as digestion, heart rate, blood pressure, pupil dilation, kidney function and more. Symptoms can be mild to debilitating.
One of the more common forms of dysautonomia is called POTS (postural orthostatic tachycardia syndrome). POTS can impact people of any age or gender, but the majority of patients are women between the ages of 12 and 50. An estimated 1 in 100 teens are impacted. The disability seen in POTS is similar to that of congestive heart failure or COPD, but POTS receives much less research funding. This month long global challenge will unite us as we raise awareness and support for Dysautonomia International's POTS Research Fund, with grants going to fund Early Career Investigators.
Help us reach our goal this year of $80,000. You can participate solo, build a spirit team, or unite with with your region in the #STEPtember Challenge. Donations are greatly appreciated from anyone not wishing to take part in the month long challenge.
*For event information, please check out the event website at POTSWalk.org.
Create a Team & Fundraising Page
Reach out to family and friends and encourage them to join your team and support Dysautonomia International. Create a custom fundraising page and let everyone know why you are participating and the importance of raising funds to support Dysautonomia International. Join others for some friendly competition on reaching your fundraising goals.
Follow these easy steps to get started on creating your fundraising page & team:
Don't forget to share your story and pictures on your team page. Have fun!
Dysautonomia International is a 501(c)(3) non-profit that seeks to improve the lives of over 70 million individuals around the world living with disorders of the autonomic nervous system. The organization offers patient and physician education resources, community outreach, legislative advocacy, and patient support for all autonomic disorders. Our innovative research program focuses on postural orthostatic tachycardia syndrome (POTS). Since its launch in 2012, Dysautonomia International has raised over $4M for research, education and support. The organization has partnered with autonomic experts at Mayo Clinic, Harvard University, Vanderbilt University, University of Texas Southwestern and many other institutions to advance the pace of research and provide educational programs for physicians and patients alike.
Thank you for supporting the 2020 POTS Walk #STEPtember Challenge. Below is a summary of your transaction. Please print this summary for your records. An email confirmation will be automatically sent in addition to this summary.
We appreciate your generous support of this event. All donations will be put to work immediately to fund research, education, awareness and advocacy for millions of people living with dysautonomia. This summary and the email you will receive will serve as your receipt for tax purposes if an additional donation was made during the event registration process. Dysautonomia International is a 501(c)(3) non profit organization and all donations are tax deductible to the maximum extent allowed by law. Please check with your tax advisor regarding the deductibility of your contribution.
Questions? Please contact us through email at email@example.com.